:)

:)

Posted by Annie on December 22, 2010 at 11:21 PM

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Hello!

I'm back
So much has happened over the last few weeks....
Lots of fanastic stuff and some sad stuff too......
Fantastic stuff would be: Team James. as some of you know Oliver and I decided... there just sint anywhere local where we can take James and Harry where we feel comfortable when he kicks off or does his different behaviour.... so we have turn the playroom into a fab one... with a little help from our friends have got some great toys to constantly change them round, so James doesnt get stuck on certain things.... we're just about to do the flooring... its a foam floor so when he head bangs etc he cant hurt himself ethier.
We decided to open the playroom to other parents that would like to bring their children too.... they dont need to have special needs of any kind to come.. and can bring their siblings too..... esp in the summer where we have lots of outdoor space to play safely.
Team James so far in just a month has raised £480.
We did The stamford Santa Fun Run, had a childrens Christmas Party held at Rascals in Stamford too... as well as others doing their own fundraising. That amount is AMAZING.

On wednesday starting in Jan , we open our house ....... a chance for parents to come and feel supported... talk.. cry... and share stories about anything...... we all have the same hopes and fears for our children, and sometimes talking to someone differnt helps.

We want to be able to help those who see a certain toy maybe that they feel will help their child in development and be able to purchase them it, we want to be able to say ' lets all go on a trip out' maybe to a zoo or the seaside. But go as a group.... supporting each other.... .
and that what Team James is all about.. being a Team.

Have lots of ideas... you know me my brain never stops!!!


Sad bits:

James has had his 3rd assement. The Dr feels he is worse. his spinning around and his constant mmmmmmm'ing  is getting louder, his lining up of items is crazy.... although his eye contact is more . she feels it's because he sees people as objects rather than people
he comes and kisses people now but again thats because he gets the same reaction every time ( joy) it's called Cause for Reaction. He does the same thing with Harry... he pushs him onto the floor.. Harry crys.. James loves it. not in a nasty way... its the cause for reaction. Harry will cry every time with out fail.

James ' biting has become much worse.. so much so that he now has  a cloth hanging from his clothes... when he needs to bite theres always something on hand...... he looks like a mini gangster with it hanging off his trousers! LOL

You know what ..... some of the hardest things are these.... when we go out and james gets excited he hand flaps.. people look at him oddly.... Harry although 1 year younger  is probably now beyond James in his development. Harry has picked up makaton signing.. James still does not look.
and to think that a year ago.... there were just a couple of indicatons of different patterns... we have lost so much of him in the last 9 months...... my fear is that while he's still so little the true colours of his Autism havent shown them selves yet and he slips even further away..... if thats possible.

breaks both our hearts .
we love him dearly no matter what.. but that dream of having two babies so close together and having fun, playing, going motorcrossing.. and all the dad stuff they should do probably wont happen now as a family.
the trip to the seaside, the picnic.... James is a wonderer..... we can be in the middle of a field and he just starts walking off... of course you call him.. but he does not respond.. of course you go and get him , but you put him down and he's gone again...off on the same route.. we could do this fifty times.... its so draining.
I tell you I'm sure people think ' they've got no control'.. and you knw what we havent when we are somewhere differnt. he ethier lies on the floor face down or  is off on a wonder..... whilst he's so little we can get away with it i guess but as he gets older its going to get harder. but we know that and will just get on with it.

God I love all my children so much xx